30
Dec
12

Friend Update- Transplant Advisory Council- Comprehensive Transplant Center (CTC)


As an update to our important work at the transplant center, here is an E-Mail I sent out to our “friends” list.

Dear Friend of the CTC:

I appreciate your continued interest in the efforts of our Transplant Advisory Council for Northwestern Medicine’s Comprehensive Transplant Center (CTC). As promised, I am updating you on our progress to date.

Our Council now consists of 14 board members all with unique talents. This is a group of very grateful transplant recipients, donors and family members who have the passion to give back after receiving the gift that has been given to them. Our Council has met monthly since April and we are pursuing various initiatives that fit within our shared vision.

As a Council, we work closely with the Development Office and the CTC to help raise money and to assist in building a sustainable philanthropy model that will enhance the center’s ground-breaking transplant related research programs. The CTC has grown into one of the premier transplant centers in America through the leadership of Dr. Michael Abecassis and we want to do our part to advance its mission.

We are currently in the process of reaching out to and building the CTC transplant community. Currently, over 4,000 transplant patients have received care from the CTC. Our Council will serve as the catalyst that unites this community in a non-clinical environment. We have an opportunity to accomplish something that hasn’t been done before. To the best of our knowledge we are the only transplant center in America where patients, recipients, and champions have banded together in order to support the future of the center.

During the first quarter of 2013, Dr. Abecassis will send out a mass communication to all patients advising them of our efforts and welcoming them to our website, which is currently under development, and Facebook page (URLs for these accounts are included below). The website will serve as a portal for individuals to partake in the community and to interact with other transplant recipients, donors and family members who understand the unique challenges they are facing. It will also contain information regarding the various research projects and initiatives underway at the CTC with links to the Northwestern Foundation and the CTC website.

The board has also been instrumental in writing the policy for the Patient Assistance Fund (PAF). The PAF is a fund administered by the CTC to help those patients who need special financial aid as they go through the transplant process. Some of our Council members have donated to this fund.

As we grow, there will be volunteer opportunities for the community. As an example, the Council concluded there was an unmet need for pre-transplant patients to have the opportunity to discuss the experience with those of us who are post-transplant. We are developing a working system with the CTC so this can be accomplished. The Council will serve as a conduit for these efforts.

The Council is also in the process of developing a CASE statement. I have attached a draft. The CASE statement is the document that provides the rationale and justification for a fundraising effort. The CTC is spearheading very innovative research and it is our charge as a Council to promote these incredible efforts.

We promise to keep you updated periodically on our activities and progress. Another goal is to arrange some type of social/fund and friend raiser event during the first part of 2013. In the meantime, we appreciate your support and interest in the continued success of the CTC.

Wishing you the best for the new year….

With regards,

Dan Dickinson
Chair, Transplant Advisory Council
(Part of the Philanthropic Ambassador Network)
Northwestern Medicine

Website (currently in beta to be changed to transplantvillage.org):

http://www.nmhtac.org/

Facebook Page (please “like” us for regular updates):

https://www.facebook.com/NMHTAC

TRANSPLANT VILLAGE
A Grateful Community United to Give Back to Northwestern Medicine Organ Transplant

MISSION: Our inspired group of organ recipients, donors and their families is united in our mission to support the future of organ transplantation at Northwestern Medicine while connecting and supporting the transplant community.

Case Statement 27SEPT2012.pdf


2 Responses to “Friend Update- Transplant Advisory Council- Comprehensive Transplant Center (CTC)”


  1. 1 Bonnie Munao
    December 31, 2012 at 7:13 am

    Thanks, Dan. These update tell me you are doing great with your liver and giving back to the transplant community. This is so like you and Nancy…..warm, giving people.

    Bonnie

  2. 2 Carol
    December 31, 2012 at 10:45 am

    How is Dan doing with his meds ?? need an update !! Carol ( almost 3 year post liver tx)


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