Update and some more early detection stories……

Things are going very well on the health front.  Over the past week I have had two more of what I believe are the “final” tests.

First, last Monday was a colonoscopy.  While this is another opportunity for the Lala drugs, the preparation for this procedure does not justify the opportunity.  I will not go into detail, but look it up on the internet. YUK.  Nancy seems to have a special relationship with this Doc so he let her into the procedure room to watch.  I was told during the procedure I was reciting the Bill of Rights.  I must have memorized this sometime in my lifetime or maybe  I watch too much of Fox News Channel.  Now that I am awake, I couldn’t repeat the Bill of Rights to save my life.  Anyway, the upshot of the whole procedure was I am good to go and my next one is scheduled in 5 years and the Bill of Rights are still a part of our history.

Secondly, on Friday I had the Angiogram (Heart).  I had a virtual angiogram last summer and it showed some minor blockage.  But the real angiogram is the gold standard. The test revealed  no blockages anywhere.  Must be my genes because my cholesterol has always been low and with the right ratios.  They said it was fairly unusual to be as good as it is at my age.  Again, I had the Lala drugs but apparently not enough because the nurse came out to see Nancy in the middle of the procedure laughing and  said ” I really enjoy my job on days like this with guys like your husband”.  I am not sure what I said, but Nancy gave the nurse a sock to stick in my mouth.

So, the upshot is after all of these tests — and there has been a lot of them — is that there is nothing wrong with me except for that little lesion on the liver.  I keep thinking how blessed I am and that it has been certified there is nothing else lurking around in my body.

As for the Y90 Therasphere — I am not sure if there were ever any side effects or not.  There were a couple of days where I felt a little washed out, but it is unclear if this was the Therasphere or not.  If yes, it was still a very easy procedure.  Next Saturday I have another scan to see if the lesion has grown and the effects the Y90.  It is unclear to me if a MRI scan can indicate if the lesion has been killed or not.  But the MRI will tell us if there has been any growth.  My last scan prior to the Y90  had not grown. The biology of the tumor has always been a very slow growth.  So, I would suspect with the next scan it will either be the same or better.  No matter what, The tumor would have to have a lot of growth in order for me to be kicked off the transplant list.  It is not on my list of worries.

This last week I have talked to several folks regarding transplants —

One Lady I met through my college Alumni Association.  She contracted Hep C many years ago in a hospital visit before they knew about Hep C.  She was having  liver failure and found out when her husband made her visit` the Doc.  She had acute cirrhosis from the Hep C and almost doubled her weight because of water retention.  She received a liver within 3 months.  That was 3 years ago and today she is fine.  She went through the same process at Northwestern with the very same liver doc as me.

Another lady is a nurse.  In fact, Audrey is very smart and articulate nurse.  She told me the story about her father who has the same problem as I do — except he found out 3 years later in the process than me. Apparently, he had a scan at a hospital and they “missed” the HCC on his liver. My prayers are with you, Audrey.  This is yet another example of sticking with the experts.  An MRI is only as good as the guy that reads it.  At Northwestern and other Centers of Excellence they have those kinds of experts.  These are very smart docs in an extremely narrow field of medicine. That’s all they do every day and they are the best.  If I was one of those docs I would be very board with my job — being “the” expert in a very small field doesn’t float my boat, but luckily there are guys out there that enjoy it.  Anyway, Audrey’s  dad ended up on a Y90 program since he didn’t qualify for a transplant.  Initially, his life expectancy was measured in months.  But after the Y90 he is still going strong 4 years and counting.  The more I hear about this Y90 the more amazing it seems to be.

And then there is my close friend from South Africa.  Brian and I have been great mates for 30+ years and we watched our kids gown up together.  South Africa has very good medical care, in fact several years ago we baby sat another close American friend that needed a quadruple bypass while visiting in South Africa.  I believe the total bill was $20,000 and the procedure took place in a hospital that Christian Barnard frequented. Anyway, Brian’s daughter decided she wanted to be a Lawyer.  She was a year or two in school and decided it was not for her and changed to medicine.  Good thing she did, because it saved her dad’s life.

The daughter, Dr. Jenny, now runs the trauma center in Sandton in the  suburbs of J-burg.  I’ve been there myself. The Life Fourways Hospital  marvels anything here in the states. It  is state of the art, with a bunch of young, dedicated, and very smart docs.  Last summer Brian had some muscle pains and Jenny convinced him to come down to the clinic for a cup of coffee. She checked him out and he fine, but for some unknown reason she decided to give Brian an MRI.  She found a kidney with cancer! Purely this discovery was by accident.  The kidney was removed and he is cancer free.  It was limited to his one kidney.  SO — we are all very happy Jenny decided on medicine instead of law.  Early detection, for whatever reason is a good thing.  This is just another example.

This week we also had a little medical insurance scare.  Our company insurance was up for renewal on November 1st.  Our current insurance carrier increased our rates by about 350%!  I suppose from a business perspective I wouldn’t want me as a risk for my 2010 transplant.

We are in a PEO — That’s the acronym for Professional Employment Organization. Instead of employing people directly, The company and the PEO jointly become legal employers. The company retains all the functions an employer in terms of hiring employees, setting wages, etc. However the PEO handles everything else including payroll, benefits administration, workers’ compensation, health insurance, and retirement accounts. So the theory goes, all we have to do is write lump sum check  to the PEO covering all of our  payroll expenses and an additional fee for the PEO itself, including the health insurance where we are treated with the benefit of being recognized as one “super group”  along with the other small businesses like ours.

Originally, this was a pretty good deal.  As a small company it worked well and we enjoyed a high trust relationship with these folks.  But the PEO got sold and I believe is being  sold again.  We are loyal with our relationships, but sometimes situations can change.  And while we are loyal, we can sometimes can be  loyal to a fault. The benefits to the “super group” seem to have disappeared.  Each of our companies must now stand on their own.  Lucky for us, we scrambled to break out the companies and employees and got everything in the right box leaving a core of four as the “problem”

The upshot is we got covered at the very last minute.  But the PEO really let us down. I found out purely by accident that had we renewed with our original carrier with the 350% increase, that the transplant was capped at $50,000!  The PEO failed to tell us that and as a result we may be looking at other options in the future.  Notwithstanding these issues, it is still better than dealing with a government bureaucracy!

2 Responses to “Update and some more early detection stories……”

  1. 1 Louise Stothard
    December 15, 2009 at 7:56 am

    Dan…you are amazing!

    I believe I know your great mate Brian and his lovely daughter, Dr. Jenny (like since she was maybe 5 or 6) and I definately know that American friend you & Brian babysat for….would you believe, 16 yrs. ago!!! And truth be told it really was “your” wonderful Nancy, & Brian’s fantastic
    Barbara who did the real caretaking. They took care of me! The hospital in Bloomfontane was excellent and the care the patient got was the best. It was me, who was really in need of help.!!!!! And now look all these years later it is “your” wonderful Nancy who is there for you through it all. Yes, you are blessed! You are going to be sooooooo fine!

    Have a wonderful Christmas and we all can’t wait to see you next year! Louise

  2. 2 Sharon
    August 25, 2015 at 3:33 pm

    I am scheduled for my first Y90 in September. I am scared but your story gives me hope. Thanks

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google+ photo

You are commenting using your Google+ account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )


Connecting to %s

%d bloggers like this: